Wednesday, July 11, 2012
As we prepare for yet another chemo day tomorrow, I've been reflecting about how strong Amber really is. This illness has created a whirlwind in our family and sometimes all I do is sit and cry. It is so selfish because what Amber is going though is a million times worse what me or her sister are going through. I wish I had the power to make this all just disappear and go back to life the way it once was. My baby had her drivers learning permit, and was so excited to get her license. She had passed her drivers course and just awaiting January 2012 to come. She was constantly on the go with her friends, I could barely keep up with her and her sisters' activities. Amber was a straight A student with this photographic memory that I don't know where came from. If only I could have none of that back, but this cancer gone, I would give anything...I love you from the bottom of my heart Amber!!!!
Sunday, July 1, 2012
Wednesday, June 27, 2012
Amber had so much fun at camp! She misses all her new friends already. She definately wants to go for two weeks next year instead of one! I'm so glad that she's home though. So is her sister Paige. We missed her so much! It was so heartbreaking seeing Amber say good-bye to all her new friends. I hope that being around all kids with cancer helped her. Both her and I had a breakdown driving home. She wants to know why she has this terrible brain tunor, and so do I. I guess one day we'll know the answer to this, but right now I'm still so damn angry!!
Wonderful News from Capitol Hill! Last night, the Senate passed the Creating Hope Act as part of the final FDA Reauthorization Act (S3187), the same piece of legislation that was passed by the House of Representatives last week. The next step is for President Obama to sign the legislation into law! This is a historic moment for the children's cancer community as this legislation directly impacts the development of new drugs for children with cancer and other life life-threatening diseases. We express our gratitude to Members of Congress and their staff for their vision and support for this important legislation, and to you - the members of the children's cancer community - whose multi-year advocacy efforts ensured passage of the Creating Hope Act.