Chemo Tomorrow

Amber's tired right now from a day at the water park. She's getting antsy about Chemo tomorrow, not looking forward to it...

Camp

Amber had so much fun at camp! She misses all her new friends already. She definately wants to go for two weeks next year instead of one! I'm so glad that she's home though. So is her sister Paige. We missed her so much! It was so heartbreaking seeing Amber say good-bye to all her new friends. I hope that being around all kids with cancer helped her. Both her and I had a breakdown driving home. She wants to know why she has this terrible brain tunor, and so do I. I guess one day we'll know the answer to this, but right now I'm still so damn angry!!

Wonderful News from Capitol Hill! Last night, the Senate passed the Creating Hope Act as part of the final FDA Reauthorization Act (S3187), the same piece of legislation that was passed by the House of Representatives last week. The next step is for President Obama to sign the legislation into law! This is a historic moment for the children's cancer community as this legislation directly impacts the development of new drugs for children with cancer and other life life-threatening diseases. We express our gratitude to Members of Congress and their staff for their vision and support for this important legislation, and to you - the members of the children's cancer community - whose multi-year advocacy efforts ensured passage of the Creating Hope Act.

Amber

Amber

A Little Sick...

Picking up my baby girl in just six hours! Paige and I have missed her so much! Earlier this evening the camp called to inform us that Amber was sick. The oncology nurses there were unsuccessful at accessing her port to do the blood draw, so they ended up just doing a regular draw. Poor Amber, only one nurse at Children's Memorial has luck with her port...after a little rest and preliminary blood test results being okay, they called to say Amber was better and will be able to stay for the last night. I'm so glad this didn't happen earlier this week, I would have been even more super worried about her! I'm sure we'll have stories and photos to share tomorrow...good night Team Amber!

We can't wait to see you tomorrow Amber! We have missed you so much! Love you!

One More Day

Well, just one more day and Amber will be home from camp. We've missed her so much. Her phone call and two letters we received sure helped! She sounded so happy on the phone. She's made many new friends! More to come tomorrow as well as info about her three upcoming speaking engagements...

Photo of Amber at Cancer Camp

CAMP

Well Amber is at camp now. I miss her so much. I'm so worried about her but it's good for her & I know she's making new friends & probably having s great time! I'm having these terrible feelings though now of what life will be like without her.  It is unimaginable! I don't know how I'll ever be able to go on without her. Parents are supposed to outlive their children. I love you Amber! XOXO

Well I'm spending the day today getting Amber ready to leave got Cancer Camp tomorrow. I'm so nervous. I'm going to miss her so much. I've been with her 24/7 since she was diagnosed in November. I know there will be an Oncology Medical Team there but I am just so worried! Guess that's just what mothers do...

Amber at her first day of summer school today.  She'll be done at 1pm. She really doesn't want to go but I think it will be good for her to have something schedules to do daily.  I hope you like it Amber!!!

Had an amazing weekend! Sunday was the greatest spending the day at Simone Elkeles at her summere home along with Giancarlo and Alexander.  Amber was so happy.  We went boating and spent time with Simone and her family.  It will be a day we will never forget.

Amber has told me that she wants to know what it is going to be like to fly.  I was taken by surprize, and so not ready for this.  I didn't see it coming. She's asked that we take a Hot Air Balloon Ride.  She wants to feel what it is going to be like.  I told her that she has to keep on fighting and that she's going to pull through this. However, I booked the flight for her already for the 24th of June.

Team Amber

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